Random Things that Suck about Cancer

• Losing your hair. And then growing it back in places that previously did not grow - my moustache.
• Malfunctioning tastebuds.
• Difficulty swallowing.
• An empty sinus cavity: Whenever I breathe or talk, I hear my voice and breath amplified about 10x. You know when you are on a plane and the pressure changes, often, I'll hold my nose shut and blow air out to relieve the pressure. After that release, there remains an echo sound for a few seconds. This is what I have all day.
• Difficulty belching. Doesn't sound like a "problem", but I don't have the abdominal strength to force the gas out. This is quite annoying.
• Losing muscle mass and fat.

There's plenty more. But that's enough.

Comments

[Kelly]

I hate when you can hear your own voice amplified in your head- that happens to me alot- I can't imagine it being amplified 10 times!! As far as the no appetite/no saliva problem, does ANYTHING appeal to you at all..even slightly? What about juicy things like fruit- do you juice anymore? I love you..keep fighting..and thank you for the updates.

[Kris (devoncat)]

John,

So good to see you posting again. We miss you at the cc board.

I have that hair problem too. I have a goatee, neck hair, and a pelt on my shoulder blades. It is hard being a hairy beast of a woman...particularly when I am so thin on top.

I would also add that I hate all my farting (as does my husband).

Take care.

Kris (devoncat)

[Dr. Carole Ann Maxwell and Richard Nuzzo]

October 5, 2009

Carole Ann Maxwell & Rit Nuzzo

John:

Thanks for the updates... I agree John, cancer does suck!! We are sorry to hear that you are experiencing the side effects. Unfortunately, most of the drugs you take have the side effect of drying you out. The antidepressants are notorious for causing dryness and you take 2 of them.
It is good to know you have such good medical care. I am sure your medical team is doing all they can to give you the beast chance.

Carole Ann and I visit your blog to check out how you are doing. It's nice to see that Sarah and your family are so supportive.

You keep fighting the good fight John. You are in our prayers always...

I'll sign off in the same way my "much better half" Dr. Princess would...

Ta Ta... Farewell... Stay Loose...
Your friends,
Carole Ann & Rit

[Leslie]

Hi John -
I just watched "The Yellow Raincoat" here at the Media Center and was thinking of you. Sending you love and prayers. Thanks for sharing your journey. I hope that it is cathartic in some way! Love Leslie B

[Evan]

He buddd-e,
Sending some love from Thailand. Hope you are able to get some of that appetite back soon. Food is so good... just missing an American cheeseburger right about now.

Take care and keep kicking butt man,
Ev

[Steve]

Your boundaries are limitless. There are a thousand mountains for you to climb. No more waiting. It's your turn to have fun, again. Leaving an impressive road map for others to enjoy, admirable...
You are the face of courage. You're class and challenging spirit are matched by no other. Your life will be a celebration of accomplishments that only a select few would even dream. May you forever rest in peace. We love you!!!
Uncle Steve, Aunt Karen, your cousins Hannah and Abbey Ernst

[Jon Thomas]

Love you my man. I'll be sitting down to the poker tables for you with a heavy heart. Thank you for everything.

JT

[janetwebster]

John,I know how things are and I think of you a lot Janetx

[Evan]

God bless my friend

[Cincinnati Friend]

An inspiration. Your body left this place but not your spirit.

[donna]

God bless you John. Words cannot describe how you have moved me.

[Christopher Morin]

John, I will surely miss you. I am lucky to have had the opportunity to meet you and share 2+ years of fond memories rooming with you at Fairfield University. You are a true inspiration and I hope you have found peace.

Christopher Morin, North Grosvenordale, CT. Fairfield University 2002

[Kim Daulton, Mt. Pleasant Roomie, 2006]

John, I wish I had known you were you going to leave us. It was a blessing knowing you. You were such a kind, supportive, friendly individual and roommate. I had many wonderful times with you. I appreciated all your guitar playing and singing on my bad work days. You will be missed. My thoughts and prayers are with your family, Sarah, and friends.

[kate zaccaro]

JOHN PATRICK I MISS U SO MUCHHH IT KILLS ME EVERDAY I DRIVE BYE UR HOUSE. YOU HAVE MY BACK AND I WISH I KNEW THIS WHEN THE HOLE FAMILY FOUND OUT MY MOM DIDNT WANT ME TO HURT ANYMORE EITHER.. AND LIKE IT MAKES ME SO MAD BUT ITS THE PAST AND I KNOW YOU WOULD SAYY ITS IN THE PAST BUT I KNEW AND WOULD HAVE BEEN IN TOUCH I FEEL YOU WOULD OF SAVED ME SOONER I KNOW AGAIN PAST MY CHOOICE MY FAULT IM SORRY BUT THE HOLE TIME U WERE TRYING TO LIVE I WAS KILLING MYSLEF IM SO SORRRY I DONT KNOW IF U KNEW THAT BUT IF I WOKD HAVE BEEN TOLD AND KNOWN I FEEL IT COULD OF SAVED ME SOONER KNOWING WHAT HAS HAPPEBED BUT THE PAST IS OVER AND THIS IS PART OF MY WAY OF SAYING GOODBYE I MISSS U SO MUCH AGAIN SHUT UP KATE ITS THE PAST AND ITS NOT MY FAULT I UNDESTAND THAT AMDD THEN IF I CAME HOME WHEN I SHOULD OF AND DIDNNT MISS MY FLIGHT I WOULD OF BEEN ABLE TO SAY BYE BUT I KNOW YOUR BEHIND ME ALWAYS ANDD IM SO SORRYORRY U WERE IN PAIN I LOVE YOU SO MUCH AND IT STILL MAKES ME LAUGH WHEN I THINK BOUT UR GREEN CAR U THOUGHT U WERE ALL COOL JUST KIDDING AND I WAS ALL LITTLE LOOKING UP TOO YOU AS ALWAYS AND SAW 'SEX WAX' I ALLL LIKEE EWWWWWWWWWWWW JOHN PATRICK EWWW AND WHAT IS IT FOR..TO SHY TO ASK LOL ALLL LITTLE AND SHIT THEN LATER DWN THE ROAD WHEN I GOT A LITTLE OLDER AND THEN STARTING SURFINGG I KNEW WHAT IT WAS AND TOLD YOUU. HAHAHA HOW FUNNY/ BLINK 182 ...YOUR ROOM UR HUGE BLACK LONG THING FILLED OF CD'S GOING TO SAM ASH TOGETHER MY LITTLE SIS;S LISTEN TO THEM.. PASSED DOWN FROM U; YOUR AN AMAZINNG PEROSON ANND UR A HUGE PART OF MY LIFE I LOOKED UP TOO YOU SO MUCH AND IM SO SORRY IF I EVER LET U DOWN UR MY STRENGTH I CARRY YOU AND THE FAM. ALWAYS IN MY HEART. I LOVE YOU GOODBYE JOHN PATRICK. <3 LOVE ALWAYS THE ONE AND ONLY KATE ;) I KNOW GOD AND U ARE WATCHIND DOWN AND THANK YOU JOHN PATRICK YOU SAVED MY LIFE.. LOVE YOU SO MUCH AHHHHHHHH I HATE THIS OK GOOD BYE; P.S. IF U GET THIS IM A HORRIBLE WRITER SORRY =) SEE YOU ONE DAY AGAIN DUDETTTTT =) again thank you for your strength and support my hole life.. ur an amazing person...its so hard to say goodbye.. i still cant believe it im trying so hard...but i had to add a little more and tell you how much of an insperation you have been to me all these// ok this is my way of saying goodbye. i love you so much good bye john patrick goodbye/// i know ur watchin down and have my backkk love you